Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and ...

Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

When our son, Dean, was diagnosed with cystic fibrosis as a newborn, my husband and I were beyond overwhelmed, as most new parents would be. Once we began to wrap our heads around things, we started ...

Although people with these mutations already are approved for Trikafta® in the United States, the study results provide further evidence of the efficacy of the triple-combination therapy for this ...

It was the spring of 2008 when my world flipped upside down. I was 13 years old and just finishing up the 8th grade. I felt like a relatively “normal” kid, despite being diagnosed with cystic fibrosis ...

A person living with cystic fibrosis has many important responsibilities, such as making sure they stay on top of their medications, treatments, doctor visits, and so much more. As a 20-year-old ...

I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

Before I was diagnosed with cystic fibrosis and while recovering from surgery for placement of a colostomy bag, I became very ill with influenza (or maybe it was COVID-19; we'll never know for sure).

My journey with cystic fibrosis has been difficult, to say the least. CF was first brought into the conversation when I was 16 years old at Children's Memorial Hospital here in Chicago. I underwent ...

Trikafta made a big impact on my health when I started to take it soon after it was approved in 2019, but after a few years, I started to get sick again. I’m so happy that I can now take the newest ...