Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...
My journey with cystic fibrosis has been difficult, to say the least. CF was first brought into the conversation when I was 16 years old at Children's Memorial Hospital here in Chicago. I underwent ...
The South Carolina Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
The Central Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
With proper management, careful monitoring, and working closely with your care team and obstetric team, many women with cystic fibrosis can carry a child without significantly affecting their ...
Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives. Palliative care ...
We support the development of many helpful tools and resources to assist you in accelerating the progress toward new scientific knowledge of and new therapies for cystic fibrosis. Patient Registry We ...
My older son, Nathan, was 18 years old when he was finally diagnosed with cystic fibrosis. After many years of living and struggling with an unknown ailment, he took the news that he was living with a ...
Cystic fibrosis can affect many aspects of people's lives with the disease. Each aspect can represent a barrier to managing daily care, including financial and emotional issues, a person's life stage, ...
Medicaid provides health care coverage for nearly 40% of people living with CF in the United States. This coverage is crucial for people with CF and their families to afford the highly specialized ...
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