Growing up as someone with cystic fibrosis, I obviously had some health issues, but I was able to play sports and do many things young boys like to do. I still enjoy playing sports and being active as ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's ...

Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and ...

Although people with these mutations already are approved for Trikafta® in the United States, the study results provide further evidence of the efficacy of the triple-combination therapy for this ...

A person living with cystic fibrosis has many important responsibilities, such as making sure they stay on top of their medications, treatments, doctor visits, and so much more. As a 20-year-old ...

It was the spring of 2008 when my world flipped upside down. I was 13 years old and just finishing up the 8th grade. I felt like a relatively “normal” kid, despite being diagnosed with cystic fibrosis ...

Cystic fibrosis doesn't define me, but I must admit it does impact most of my life in some way or another. When I started talking to my care team about transitioning a couple of years ago, it was new ...

Jenn is a single mother of four children between the ages of 10 to 18, two of whom have cystic fibrosis. A Colorado native, she is currently a wedding and portrait photographer living in Denver and ...

Waiting. It’s not just a verb — it’s a state of being, an emotional terrain, a test of patience and resilience. For those of us living with cystic fibrosis, waiting is woven into the fabric of our ...

Author, For years, I feared that I’d outlive my daughter. And then science did something amazing. “Last year, my daughter graduated from college. She recently started her first full-time job and is ...