Growing up as someone with cystic fibrosis, I obviously had some health issues, but I was able to play sports and do many things young boys like to do. I still enjoy playing sports and being active as ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

With proper management, careful monitoring, and working closely with your care team and obstetric team, many women with cystic fibrosis can carry a child without significantly affecting their ...

A nurse coordinator for nine years, Sue serves as the nurse coordinator and program coordinator at the adult cystic fibrosis center at Oregon Health & Science University (OHSU). She has served on the ...

The Central Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives. Palliative care ...

The South Carolina Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

My journey with cystic fibrosis has been difficult, to say the least. CF was first brought into the conversation when I was 16 years old at Children's Memorial Hospital here in Chicago. I underwent ...

My older son, Nathan, was 18 years old when he was finally diagnosed with cystic fibrosis. After many years of living and struggling with an unknown ailment, he took the news that he was living with a ...

Cystic fibrosis can affect many aspects of people's lives with the disease. Each aspect can represent a barrier to managing daily care, including financial and emotional issues, a person's life stage, ...

We support the development of many helpful tools and resources to assist you in accelerating the progress toward new scientific knowledge of and new therapies for cystic fibrosis. Patient Registry We ...